Strategic Objective 4: Strong and dynamic foundations

2-year goal
Action 4.2.3

Identify opportunities to improve equitable cancer care through the digital health ecosystem.

Access to cancer care across the continuum continues to be a challenge for many priority population groups, particularly those in rural and remote areas, Aboriginal and Torres Strait Islander people, and people who are less mobile. The digital health ecosystem refers to the network of technology and digitally enabled services, programs, tools and platforms that contributes to the operation and delivery of health care services.

Digital health and virtual models of care have significant potential to improve equitable access to quality cancer care by providing care closer to or in the home, increasing access to specialists and multidisciplinary teams, and reducing inefficiencies of delayed appointments, wait times and travel.[147] The COVID-19 pandemic has accelerated uptake of virtual care and prompted the emergence of new innovative models of care to deliver timely health services.

Leveraging recent investments in virtual care infrastructure and advancements in the reliability and cost effectiveness of digital health technologies, virtual care will enable the cancer workforce to increasingly adopt innovative practices and provide equitable, efficient, and quality cancer care into the future.

This 2-year action is focused on identifying existing and emerging opportunities within the digital health ecosystem to improve equitable cancer care. Based on the current digital landscape, such opportunities could consider:

  • virtual care and telehealth to connect with consumers and manage treatment and care across the Optimal Care Pathway (OCP)
  • remote patient monitoring systems to monitor symptoms, improvements in condition, medication adherence and overall personal health and wellness
  • virtual reality care and digital therapy to administer rehabilitative and survivorship services at home or across flexible locations
  • My Health Record and e-referrals expansion to increase utilisation for cancer care and promote the seamless transfer of consumer information to specialists and other healthcare providers
  • Artificial Intelligence (AI) for diagnosis, screening and monitoring of symptoms and disease progression
  • predictive analytics applications to complement OCPs and guide treatment decisions
  • digital portals for consumers to manage their healthcare information and improve self-management of care plans and empowerment.

Implementation of this action should support a person-centred approach, be evidence-based, and effectively integrated into best practice models of care. Further, this action should consider ways to ensure the cancer workforce has the capacity and capabilities to deliver digital and hybrid models of care. It may include considerations for upskilling the cancer care workforce in new technologies to ensure safe and effective adoption.

Consideration is also required to ensure that access to technology, internet connectivity issues, digital literacy levels, and hesitancy to adopt technology does not disadvantage certain populations in the delivery of virtual models of care. Further research is needed on how the modalities and models of virtual cancer care impact the experiences and outcomes for priority populations. Implementation should also align to the National Digital Health Strategy and Framework for Action.[148]

It is also important to consider potential risks associated with expanding digital models of care. This may include increased risk that signs or symptoms are ignored, unidentified or misdiagnosed, reduced consumer satisfaction with the level of engagement with their cancer care team and restricted ability for healthcare professionals to undertake clinical examinations.[149]

Stakeholder Quotes

Access is a big issue. In Australia the tyranny of distance is real. During the pandemic, increased funding and use of telehealth has helped address this issue to some degree.
Public Consultation Submission
Access is a big issue. In Australia the tyranny of distance is real. During the pandemic, increased funding and use of telehealth has helped address this issue to some degree.
Public Consultation Submission
Telehealth strategies are gaining in sophistication, enabling partnerships between metropolitan and regional cancer centres to facilitate the delivery of clinical trials, improved access to novel therapies and the development of clinical networks.
Public Consultation Submission
Technology can be leveraged to support the health workforce; digital systems would complement and work in harmony with humans, however there is currently a disjointed health architecture in Australia, where many systems are not utilised.
Strategic Objectives Workshop

Implementation Considerations

Aboriginal and Torres Strait Islander people
Adolescents and Young Adults
Children
People from Culturally and Linguistically Diverse (CALD) Backgrounds
People living with Disability
Lesbian, Gay, Bisexual, Transgender, Intersex, Queer, and Asexual (LGBTIQA+) People
People in Lower Socioeconomic Groups
People Living with a Mental Illness
Older Australians
People Living in Rural and Remote Areas
  • Co-design the digital health ecosystem, technology implementation and virtual care delivery with Aboriginal and Torres Strait Islander people and communities, with consideration of the cultural needs of Aboriginal and Torres Strait Islander consumers and their preference for care on Country.
  • Virtual cancer care that involves Aboriginal and Torres Strait Islander Health Workers and/or Health Practitioners where possible.
  • E-referrals, predictive analysis and digital portals should align with Action 4.2.4 Establish Aboriginal and Torres Strait Islander-led initiatives which strengthen Aboriginal and Torres Strait Islander data sovereignty and governance of cancer data.

Aboriginal and Torres Strait Islander people

  • Co-design the digital health ecosystem, technology implementation and virtual care delivery with Aboriginal and Torres Strait Islander people and communities, with consideration of the cultural needs of Aboriginal and Torres Strait Islander consumers and their preference for care on Country.
  • Virtual cancer care that involves Aboriginal and Torres Strait Islander Health Workers and/or Health Practitioners where possible.
  • E-referrals, predictive analysis and digital portals should align with Action 4.2.4 Establish Aboriginal and Torres Strait Islander-led initiatives which strengthen Aboriginal and Torres Strait Islander data sovereignty and governance of cancer data.

Adolescents and Young Adults

  • Digital health ecosystem designed to be user-friendly for adolescents and young adults, for example using tailored apps.

Children

  • Information and guidance for families and carers on how a digital health ecosystem is integrated alongside OCPs to ensure children have opportunities to continue participating in school and social activities where possible.
  • Engage with families and carers to obtain informed consent to participate in virtual care.
  • Digital health ecosystem that ensures children do not feel excluded from consultations and remain informed about their care and treatment.
  • Digital health ecosystem designed to be user-friendly for children, for example using tailored apps.

People from Culturally and Linguistically Diverse (CALD) Backgrounds

  • Digital health ecosystem that considers the specific needs of people with diverse backgrounds, including multiple language options for digital platforms and e-portals and matching consumers with interpreters or multilingual health professionals.

People living with Disability

  • Digital health ecosystem that enables better access and support to people living with disability, particularly those with mobility challenges.
  • Delivery of healthcare professionals’ guidelines for engaging with carers, people with hearing impairments, people who are non-verbal or speech impaired.

Lesbian, Gay, Bisexual, Transgender, Intersex, Queer, and Asexual (LGBTIQA+) People

  • Digital health ecosystem that promotes culturally safe digital cancer care services to LGBTIQA+ people who may face greater social stigma that prevents access to cancer care.

People in Lower Socioeconomic Groups

  • Digital health ecosystem designed to prioritise cost-effectiveness.
  • Expand financial support provided to people in lower socioeconomic groups for digital connectivity to ensure that a digital health ecosystem does not exacerbate the gap in accessibility for those who have less access to digital infrastructure.

People Living with a Mental Illness

  • Digital health ecosystem that ensures that people living with a mental illness feel included in virtual consultations, have equitable access to emerging digital technologies and continue to experience the same level of person-centred care as they do with in-person appointments.

Older Australians

  • Digital health ecosystem that provides linkages between virtual cancer care with in-home and residential aged care services and programs to improve digital health literacy and empower older Australians.
  • Information and guidance for carers and families of older Australians on the role, risks and benefits of a digital health ecosystem such as predictive analytics to ensure informed consent and decision making.

People Living in Rural and Remote Areas

  • Digital health ecosystem that addresses the role of internet access, connectivity issues and digital infrastructure when implementing virtual models of care in rural and remote areas.
  • Digital health ecosystem that ensures the healthcare workforce in rural and remote areas are prioritised for training in the delivery of digitally enabled cancer care.
  • Digital health ecosystem that ensures that people living in rural and remote areas continue to have access to in-person cancer care.

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