People From
Culturally &
Linguistically Diverse
Backgrounds

People from Culturally and Linguistically Diverse (CALD) Backgrounds

Australia’s population is diverse. Many people in Australia were born overseas, have a parent who was born overseas, and speak languages other than English. In 2021, 28% of Australia’s resident population were born overseas and 22% of people living in Australia who were Australian born have one or both parents born overseas.[37][38]

Additionally, in 2021, 22% of the population spoke a language other than English at home. Among people who arrived to live in Australia, 8% indicated they do not speak English well, and a further 2% do not speak English at all.[37]

People identifying as belonging to diverse populations may identify across multiple priority population groups. This intersectionality can result in compounding impacts of social, cultural, commercial and environmental determinants of health on cancer experiences and outcomes.

Current state

National health data on populations of people from diverse backgrounds is sparse.[39] Current data captured are not comprehensive and do not accurately represent the diverse and multicultural landscape in Australia.

The data that are available indicate that people from diverse backgrounds experience greater adversity in accessing culturally responsive care and information due to communication barriers, poorer health literacy, and cultural variations.[40][41][42][43]

Factors which further impact people in diverse communities accessing the care they need include the ability to navigate the health system, adequacy of interpretation, and cost to access services.[44]

People from diverse backgrounds may experience stigma due to their culture and beliefs and may find it difficult to involve their families in decisions regarding treatment options. Evidence suggests that people from diverse backgrounds experience difficulty in engaging with health professionals because of unfamiliarity with the health system and their experiences with health providers who may have a limited understanding of appropriate cultural and communication practices.[41][42][44] Additionally, people from diverse backgrounds tend to be underrepresented in clinical trials, which may lead to inequitable access to innovative cancer treatments.[45]

Future state

The Australian Cancer Plan aims to improve health equity for people from diverse backgrounds.

This includes improving communication between healthcare providers and people from diverse backgrounds through training the workforce in cultural competency, effective use of interpreter services, improving data collection and linkages to enable better identification of specific cultural demographics, and increasing health literacy through targeted cancer care information and resources, as well as access to interpreters and language-appropriate digital platforms to liaise with patients.

Key Frameworks, Strategies, and Relevant Plans

Cultural and Linguistic Diversity 2018–22 Strategy

Year: 2018
Author: National Disability Insurance Agency, Australian Government

The Cultural and Linguistic Diversity Strategy 2018–22 is the National Disability Insurance Agency’s public statement of commitment to working alongside people with disability from diverse backgrounds to achieve access to, and outcomes from, their National Disability Insurance Scheme Plan.

https://www.ndis.gov.au/about-us/strategies/cultural-and-linguistic-diversity-strategy#%3A%7E%3Atext%3DThe%20Cultural%20and%20Linguistic%20Diversity%20Strategy%202018%20(the%20Strategy)%20is%2Cbasis%20with%20the%20broader%20population

Queensland Multicultural Action Plan 2022–23 to 2023–24

Year: 2022
Author: Queensland Government

The Queensland Multicultural Action Plan 2022–23 to 2023–24 provides a framework to build the economy and community, provide better access to interpreters, and improve cultural diversity data to enhance service delivery, to improve social and economic outcomes for people from culturally and linguistically diverse backgrounds.

https://www.cyjma.qld.gov.au/multicultural-affairs/policy-governance/multicultural-policy-action-plan

WA Multicultural Policy Framework

Year: 2020
Author: Government of Western Australia

The WA Multicultural Policy Framework sets out measurable strategies for the public sector to ensure operations, services, and programs are inclusive and accessible for people from culturally and linguistically diverse backgrounds.

https://www.omi.wa.gov.au/resources-and-statistics/publications/publication/wa-multicultural-policy-framework

NSW Plan for Healthy Culturally and Linguistically Diverse Communities: 2019–2023

Year: 2019
Author: NSW Health

The NSW Plan for Healthy Culturally and Linguistically Diverse Communities: 2019–2023 aims to ensure people of culturally and linguistically diverse backgrounds have equitable access to health care services that are culturally responsive, safe, and high quality.

https://www.health.nsw.gov.au/multicultural/Pages/policies-and-plans.aspx

Cultural Responsiveness Framework: Guidelines for Victorian Health Services

Year: 2009
Author: Victorian Department of Health

The Cultural Responsiveness Framework outlines a strategic and whole-of-organisation approach for health services to strive for equal access to, and the provision of, quality health care for the whole population. The framework is designed to be aligned with health services' strategic planning processes.

https://www.health.vic.gov.au/publications/cultural-responsiveness-framework-guidelines-for-victorian-health-services

National Strategy for the Elimination of Cervical Cancer

Year: In development
Author: Australian Centre for the Prevention of Cervical Cancer

The National Strategy for the Elimination of Cervical Cancer will aim to eliminate cervical cancer for all people with a cervix across the diverse communities in Australia.

https://acpcc.org.au/elimination/

Implementation considerations

Maximising cancer prevention and early detection
Enhanced consumer experience
World class health systems for optimal care
Strong and dynamic foundations
Workforce to transform the delivery of cancer care
Achieving equity in cancer outcomes for Aboriginal and Torres Strait Islander people

Stakeholder input

Improved communication about cancer prevention with individuals from diverse backgrounds was identified. This included ensuring accessible and culturally appropriate communication about the role of cancer screening in preventing cancers and identifying cancers early.

Training health workers in cultural safety and communication will support engagement with people from diverse backgrounds in cancer screening programs and promote understanding of cancer prevention and early detection.

2 Years
5 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Overcoming barriers to engagement with screening and primary care services by addressing cancer stigma and taboos within many multicultural communities, including perceptions of early signs and symptoms of cancer.
  • Health promotion activities provided in a range of languages and increase access to interpreters.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Further research on the impact of stigma, discrimination, health literacy, social isolation, and community on cancer outcomes.
-
1.2.4
Undertake ongoing assessment of the evidence for risk-based, cost-effective population cancer screening.
  • Risk-based, cost-effective population cancer screening to include predisposing cancer risk factors that are unique to different members from diverse communities and backgrounds.
-

2 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Overcoming barriers to engagement with screening and primary care services by addressing cancer stigma and taboos within many multicultural communities, including perceptions of early signs and symptoms of cancer.
  • Health promotion activities provided in a range of languages and increase access to interpreters.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Further research on the impact of stigma, discrimination, health literacy, social isolation, and community on cancer outcomes.
-
1.2.4
Undertake ongoing assessment of the evidence for risk-based, cost-effective population cancer screening.
  • Risk-based, cost-effective population cancer screening to include predisposing cancer risk factors that are unique to different members from diverse communities and backgrounds.
-

5 Years

Actions

1.5.3
Implement new, and improve existing, evidenced-based, risk-stratified cancer screening programs.
  • Delivery of informative resources on the potential benefits of risk-stratified screening in a wide variety of languages and culturally appropriate mediums.
-
1.5.4
Develop a policy framework for genomics in cancer control across the cancer care continuum.
  • Policy framework to include direction on engagement with people from diverse backgrounds, including a strategy for ensuring communications and applications for genomic testing are accessible and available in a wide variety of languages (including processes of informed consent).

-

Maximising cancer prevention and early detection

Stakeholder input

Improved communication about cancer prevention with individuals from diverse backgrounds was identified. This included ensuring accessible and culturally appropriate communication about the role of cancer screening in preventing cancers and identifying cancers early.

Training health workers in cultural safety and communication will support engagement with people from diverse backgrounds in cancer screening programs and promote understanding of cancer prevention and early detection.

2 Years
5 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Overcoming barriers to engagement with screening and primary care services by addressing cancer stigma and taboos within many multicultural communities, including perceptions of early signs and symptoms of cancer.
  • Health promotion activities provided in a range of languages and increase access to interpreters.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Further research on the impact of stigma, discrimination, health literacy, social isolation, and community on cancer outcomes.
-
1.2.4
Undertake ongoing assessment of the evidence for risk-based, cost-effective population cancer screening.
  • Risk-based, cost-effective population cancer screening to include predisposing cancer risk factors that are unique to different members from diverse communities and backgrounds.
-

2 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Overcoming barriers to engagement with screening and primary care services by addressing cancer stigma and taboos within many multicultural communities, including perceptions of early signs and symptoms of cancer.
  • Health promotion activities provided in a range of languages and increase access to interpreters.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Further research on the impact of stigma, discrimination, health literacy, social isolation, and community on cancer outcomes.
-
1.2.4
Undertake ongoing assessment of the evidence for risk-based, cost-effective population cancer screening.
  • Risk-based, cost-effective population cancer screening to include predisposing cancer risk factors that are unique to different members from diverse communities and backgrounds.
-

5 Years

Actions

1.5.3
Implement new, and improve existing, evidenced-based, risk-stratified cancer screening programs.
  • Delivery of informative resources on the potential benefits of risk-stratified screening in a wide variety of languages and culturally appropriate mediums.
-
1.5.4
Develop a policy framework for genomics in cancer control across the cancer care continuum.
  • Policy framework to include direction on engagement with people from diverse backgrounds, including a strategy for ensuring communications and applications for genomic testing are accessible and available in a wide variety of languages (including processes of informed consent).

-

Enhanced consumer experience

Stakeholder input

Stakeholders noted that people from diverse backgrounds experience difficulties in accessing culturally responsive supportive care and information. Language barriers impact on communication with health providers, making it difficult for individuals to understand and adhere to treatments.

The importance of culture, spiritual needs and family in health care decisions was often misunderstood or dismissed. Limited availability of tailored information, and insufficient understanding of health services were also raised as factors impacting on optimal cancer care experiences and outcomes.

2 Years

Actions

2.2.1
Develop a national framework for and implement integrated multi-channel, multi-disciplined navigation models that ensure the right support at the right time for every consumer across the cancer continuum.
  • National navigation models to address the language barriers and varying health literacy of consumers from diverse backgrounds. This could include the use of interpreters, multilingual care coordinators, availability of resources in languages other than English, and linkages with multicultural health services.
-
2.2.2
Improve availability of co-designed, tailored information and care for consumers to improve health literacy and reduce cancer-related stigma.
  • Co-design tailored multilingual resources for people with diverse backgrounds.
  • Increased inclusion of interpreters and culturally trained health providers during the delivery of cancer care to further enhance the delivery of information and care.
-

2 Years

Actions

2.2.1
Develop a national framework for and implement integrated multi-channel, multi-disciplined navigation models that ensure the right support at the right time for every consumer across the cancer continuum.
  • National navigation models to address the language barriers and varying health literacy of consumers from diverse backgrounds. This could include the use of interpreters, multilingual care coordinators, availability of resources in languages other than English, and linkages with multicultural health services.
-
2.2.2
Improve availability of co-designed, tailored information and care for consumers to improve health literacy and reduce cancer-related stigma.
  • Co-design tailored multilingual resources for people with diverse backgrounds.
  • Increased inclusion of interpreters and culturally trained health providers during the delivery of cancer care to further enhance the delivery of information and care.
-

World class health systems for optimal care

Stakeholder input

People from diverse backgrounds do not always receive culturally responsive, sensitive or tailored care due to a lack of understanding of cultural needs and reliance on non-professional interpreters, such as relatives.

2 Years

Actions

3.2.1
Develop and implement a national framework that standardises the development, update, evaluation and uptake of Optimal Care Pathways (OCPs), including for priority population groups.
  • National framework that provides culturally safe pathways required for people with diverse backgrounds, including delivery of resources in multiple languages, increased access to professional interpreters who understand the unique health needs of certain cultural groups, and greater engagement with family and relatives.
-
3.2.2
Develop a national framework for networked, distributed comprehensive cancer care, to facilitate provision of services as close as safely possible to where patients live. This will include the role of Comprehensive Cancer Centres to enhance patient outcomes, strengthen transparency and accountability, and drive continuous improvements for all patients across the network regardless of where the care is provided.
  • National framework for networked comprehensive cancer care co-designed with people with diverse backgrounds to address specific needs and requirements across the cancer care continuum, including access to interpreters, resources provided in multiple languages and recognition of specific customs that may intersect with the delivery of treatment.
-
3.2.3
Implement innovative, evidence-based and cost-effective models of care for people living with and beyond cancer.

Innovative, evidence-based models of care that include multidisciplinary teams for people with diverse backgrounds include practitioners with multilingual capabilities, cultural safety training and/or interpreters.

-
3.2.4
Develop and refine integrated care models to maximise access to high-quality, timely and evidence-based palliative and end-of-life care, including voluntary assisted dying.
  • Integrated care models that improve access to multilingual palliative care, advance care planning, end-of-life care and VAD information and resources for those undergoing treatment and consider integrating interpreters in palliative, advance care planning, and end-of-life models of care.
-

2 Years

Actions

3.2.1
Develop and implement a national framework that standardises the development, update, evaluation and uptake of Optimal Care Pathways (OCPs), including for priority population groups.
  • National framework that provides culturally safe pathways required for people with diverse backgrounds, including delivery of resources in multiple languages, increased access to professional interpreters who understand the unique health needs of certain cultural groups, and greater engagement with family and relatives.
-
3.2.2
Develop a national framework for networked, distributed comprehensive cancer care, to facilitate provision of services as close as safely possible to where patients live. This will include the role of Comprehensive Cancer Centres to enhance patient outcomes, strengthen transparency and accountability, and drive continuous improvements for all patients across the network regardless of where the care is provided.
  • National framework for networked comprehensive cancer care co-designed with people with diverse backgrounds to address specific needs and requirements across the cancer care continuum, including access to interpreters, resources provided in multiple languages and recognition of specific customs that may intersect with the delivery of treatment.
-
3.2.3
Implement innovative, evidence-based and cost-effective models of care for people living with and beyond cancer.

Innovative, evidence-based models of care that include multidisciplinary teams for people with diverse backgrounds include practitioners with multilingual capabilities, cultural safety training and/or interpreters.

-
3.2.4
Develop and refine integrated care models to maximise access to high-quality, timely and evidence-based palliative and end-of-life care, including voluntary assisted dying.
  • Integrated care models that improve access to multilingual palliative care, advance care planning, end-of-life care and VAD information and resources for those undergoing treatment and consider integrating interpreters in palliative, advance care planning, and end-of-life models of care.
-

Strong and dynamic foundations

Stakeholder input

People from diverse backgrounds can be underrepresented in clinical trials, which may lead to members of this priority population group not being able to access the latest cutting-edge treatment. The importance of increasing engagement and participation of people from diverse communities in research and clinical trials was identified.

Stakeholders also expressed the need to improve data collection and linkage to better identify people from diverse communities that are at greatest risk of poorer cancer outcomes.


2 Years

Actions

4.2.1
Develop an agreed national cancer data framework to improve accessibility, consistency and comprehensiveness of integrated data assets.
  • Improved data collection and linkage to better identify people with a diverse background who are at greatest risk of poor cancer outcomes.
  • Improved data collection to understand cancer screening participation rates and targeted programs to improve health literacy and participation rates across specific communities.
-
4.2.2
Ensure targeted and innovative research investment into areas of unmet and emerging need; and improve clinical trial design and equitable access.
  • Co-design clinical trials with people from diverse backgrounds to ensure priorities and needs are incorporated.
  • Enhance participation in clinical trials by designing trials to be culturally safe for people with diverse backgrounds and having interpreters available.
-
4.2.3
Identify opportunities to improve equitable cancer care through the digital health ecosystem.
  • Digital health ecosystem that considers the specific needs of people with diverse backgrounds, including multiple language options for digital platforms and e-portals and matching consumers with interpreters or multilingual health professionals.
-

2 Years

Actions

4.2.1
Develop an agreed national cancer data framework to improve accessibility, consistency and comprehensiveness of integrated data assets.
  • Improved data collection and linkage to better identify people with a diverse background who are at greatest risk of poor cancer outcomes.
  • Improved data collection to understand cancer screening participation rates and targeted programs to improve health literacy and participation rates across specific communities.
-
4.2.2
Ensure targeted and innovative research investment into areas of unmet and emerging need; and improve clinical trial design and equitable access.
  • Co-design clinical trials with people from diverse backgrounds to ensure priorities and needs are incorporated.
  • Enhance participation in clinical trials by designing trials to be culturally safe for people with diverse backgrounds and having interpreters available.
-
4.2.3
Identify opportunities to improve equitable cancer care through the digital health ecosystem.
  • Digital health ecosystem that considers the specific needs of people with diverse backgrounds, including multiple language options for digital platforms and e-portals and matching consumers with interpreters or multilingual health professionals.
-

Workforce to transform the delivery of cancer care

Stakeholder input

Stakeholders indicated that the cancer care workforce should reflect the cultural diversity of the cancer patient population. A culturally diverse cancer care workforce would allow for the delivery of culturally appropriate cancer care and the ability to improve communication with people with diverse backgrounds.

There are opportunities to partner with community-based organisations to train the workforce in cross-cultural communication and cultural safety. Such training would ensure that the cancer care workforce delivers culturally appropriate cancer care to patients with diverse backgrounds.

2 Years

Actions

5.2.1
Identify current and emerging workforce undersupply in line with cancer workforce modelling and other national health workforce strategies, and initiate planning with the sector towards building future workforce capacity and capability.
  • Model the distribution of cancer care practitioners trained in culturally safe care and support for consumers with diverse backgrounds, and availability of multilingual practitioners and interpreters in the cancer care workforce.
  • Develop a diverse cancer care workforce pipeline through diversity measures in training, recruitment, retention and talent management.
-
5.2.2
Build on existing capability of the primary care workforce to collaboratively and sustainably support the needs of consumers.
  • Build capability of primary care workforce to deliver supportive care in a culturally safe manner through regular training, recruiting more healthcare workers with diverse backgrounds and guidance on how to incorporate the role of community supports and family into an individual’s cancer journey.
-

2 Years

Actions

5.2.1
Identify current and emerging workforce undersupply in line with cancer workforce modelling and other national health workforce strategies, and initiate planning with the sector towards building future workforce capacity and capability.
  • Model the distribution of cancer care practitioners trained in culturally safe care and support for consumers with diverse backgrounds, and availability of multilingual practitioners and interpreters in the cancer care workforce.
  • Develop a diverse cancer care workforce pipeline through diversity measures in training, recruitment, retention and talent management.
-
5.2.2
Build on existing capability of the primary care workforce to collaboratively and sustainably support the needs of consumers.
  • Build capability of primary care workforce to deliver supportive care in a culturally safe manner through regular training, recruiting more healthcare workers with diverse backgrounds and guidance on how to incorporate the role of community supports and family into an individual’s cancer journey.
-

Achieving equity in cancer outcomes for Aboriginal and Torres Strait Islander people

The Australian Cancer Plan considers an intersectional and health equity approach for Aboriginal and Torres Strait Islander people. This is more than recognising the multiple backgrounds, experiences, and ways Aboriginal and Torres Strait Islander people identify. This approach addresses the way membership of multiple groups may impact people's health and wellbeing needs and ability to access care.

Implementation of each action should consider the compounding impacts of intersectionality across other priority population groups.

2 Years
5 Years

Actions

6.2.1
Embed Aboriginal and Torres Strait Islander voices in policymaking on cancer prevention, care delivery and standards through leadership, collaboration and co-design processes.
6.2.2
Strengthen collaboration with service providers, regulatory authorities and the Aboriginal and Torres Strait Islander cancer workforce to establish clear accountability for culturally safe care and compliance with national standards.
6.2.3
Establish and enhance collaborative partnerships with communities and Aboriginal and Torres Strait Islander-led organisations.

2 Years

Actions

6.2.1
Embed Aboriginal and Torres Strait Islander voices in policymaking on cancer prevention, care delivery and standards through leadership, collaboration and co-design processes.
6.2.2
Strengthen collaboration with service providers, regulatory authorities and the Aboriginal and Torres Strait Islander cancer workforce to establish clear accountability for culturally safe care and compliance with national standards.
6.2.3
Establish and enhance collaborative partnerships with communities and Aboriginal and Torres Strait Islander-led organisations.

5 Years

Actions

6.5.1
Establish ongoing place-based engagement with Aboriginal and Torres Strait Islander people to understand emerging needs across the cancer care continuum.
6.5.2
Implement strategies to embed culturally safe care within cancer-related services for Aboriginal and Torres Strait Islander people.

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