Strategic Objective 2: Enhanced consumer experience

2-year goal
Action 2.2.2

Improve availability of co-designed, tailored information and care for consumers to improve health literacy and reduce cancer-related stigma.

Health literacy impacts consumers’ behaviours and health care service use. Cancer literacy poses a unique set of challenges compared with other types of health literacy, as consumer decisions regarding screening, treatment, and managing side effects are often complex, and timely decision-making is more critical.

Accessible, relevant, and tailored information and care is critical to enhancing all interaction consumers have with the cancer care system. Health literacy empowers consumers to participate fully and equally in their care and make informed decisions and reduces cancer-related stigma in the process.[131] Equitable access to information and care is also an important lever to improve system-level disparities in cancer experiences between different populations.

Activities to achieve this 2-year action may include:

  • co-designing information and care to be consumer-led, person-centred, tailored, and localised according to priority population groups, cancer stages, settings, and locations
  • improving ease of access to information and care to the whole community and all Australians, including priority population groups, while minimising pressures on scarce human resources
  • expanding access to health literacy programs and tools
  • listing and promoting access to supportive care such as psychosocial services, financial support, and allied health care
  • ensuring the continual evolution of information and care models as consumers move through their cancer care journey and needs change over time
  • improving transparency of costs and finance support options to reduce financial stress and burden on consumers
  • testing availability and suitability of information and care with consumers and integrating learnings into future activities.

Improvements to the availability of co-designed, tailored information, and care should be undertaken in alignment with existing Optimal Care Pathways (OCPs) and the multi-channel, multi-disciplined navigation models (see Action 2.2.1 Develop a national framework for and implement integrated multi-channel, multi-disciplined navigation models that ensure the right support at the right time for every consumer across the cancer continuum). Activities for this action should also seek to leverage the benefits of technologies for delivering information, care and supportive services virtually, expanding the reach of information and care to more consumers including their carers and families across Australia.

Stakeholder Quotes

Improve people’s ability to understand and engage with prevention, screening and cancer care services and information, and reduce fear, stigma and shame among Aboriginal and multicultural communities.
NSW Cancer Plan
Improve people’s ability to understand and engage with prevention, screening and cancer care services and information, and reduce fear, stigma and shame among Aboriginal and multicultural communities.
NSW Cancer Plan
Promote patients having ‘agency’ and insight into their cancer experience - this will require genuine patient/consumer involvement, particularly in relation to the development of useful and accessible information across the cancer continuum.
Public Consultation Submission
In regard to healthcare appointments, it is very important for people with disability to receive help to properly understand what is being conveyed. Visual demonstrations and pictures are useful tools to achieve this, as is having a carer/support assist with communication with healthcare providers.
Targeted Engagement

Implementation Considerations

Aboriginal and Torres Strait Islander people
Adolescents and Young Adults
Children
People from Culturally and Linguistically Diverse (CALD) Backgrounds
People living with Disability
Lesbian, Gay, Bisexual, Transgender, Intersex, Queer, and Asexual (LGBTIQA+) People
People in Lower Socioeconomic Groups
People Living with a Mental Illness
Older Australians
People Living in Rural and Remote Areas
  • Strengthen access to co-designed, tailored resources and grass-roots education to support Aboriginal and Torres Strait Islander people affected by cancer across the care continuum.
  • Improve awareness of cancer and enhance experiences by reducing the stigma associated with cancer for Aboriginal and Torres Strait Islander people.
  • Promote culturally safe support services for Aboriginal and Torres Strait Islander people and their families.
  • Tailor resources for Aboriginal and Torres Strait Islander people on cancer websites to improve accessibility.

Aboriginal and Torres Strait Islander people

  • Strengthen access to co-designed, tailored resources and grass-roots education to support Aboriginal and Torres Strait Islander people affected by cancer across the care continuum.
  • Improve awareness of cancer and enhance experiences by reducing the stigma associated with cancer for Aboriginal and Torres Strait Islander people.
  • Promote culturally safe support services for Aboriginal and Torres Strait Islander people and their families.
  • Tailor resources for Aboriginal and Torres Strait Islander people on cancer websites to improve accessibility.

Adolescents and Young Adults

  • Co-design tailored resources for adolescents and young adults experiencing cancer, and their carers.
  • Utilise digital tools such as mobile applications and social media in the delivery of information and care, as well as settings such as schools and youth health services.

Children

  • Co-design tailored resources for children experiencing cancer, their families and carers.
  • Utilise digital tools such as mobile applications in the delivery of information and care.

People from Culturally and Linguistically Diverse (CALD) Backgrounds

  • Co-design tailored multilingual resources for people with diverse backgrounds.
  • Increased inclusion of interpreters and culturally trained health providers during the delivery of cancer care to further enhance the delivery of information and care.

People living with Disability

  • Co-design information resources for people living with disability, for example people with impaired vision or hearing.
  • Co-design tailored resources for people living with disability on specific cancers and the cancer system.
  • Promote support services available for people living with disability and their families.
  • Disseminate tailored resources for people living with disability available on trusted cancer websites.

Lesbian, Gay, Bisexual, Transgender, Intersex, Queer, and Asexual (LGBTIQA+) People

  • Co-design tailored resources for the LGBTIQA+ community to build awareness of specific cancers and ease of navigation through the cancer system.
  • Promote culturally appropriate care and services for LGBTIQA+ people, such as psychosocial care, allied health care and financial planning advice support services.
  • Disseminate tailored resources for LGBTIQA+ people available on reputable and trusted cancer websites.

People in Lower Socioeconomic Groups

  • Strengthen transparency around costs associated with cancer treatment and offer financial support options and financial counselling for consumers.
  • Expand cost-effective options for accessing information on the cancer care system, including virtual care, telehealth services and online resources.

People Living with a Mental Illness

  • Build awareness of cancer care and services for people living with a mental illness, such as psychosocial care, allied health care and financial planning advice support services.
  • Disseminate tailored resources for people living with a mental illness available on reputable cancer websites for greater access to information and care.

Older Australians

  • Co-design tailored resources for older Australians experiencing cancer, including access to resources for people with lower technological capability.
  • Expand the recognition of carers in the support of older Australians with cancer, and enable them with access to relevant information for seamless navigation of cancer care and support.

People Living in Rural and Remote Areas

  • Expand virtual care, telehealth services and online resources to give people living in rural and remote areas better access to information on cancer to help them navigate the cancer care system and enable better access to supportive care.

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