Strategic Objective 2: Enhanced consumer experience

2-year goal
Action 2.2.1

Develop a national framework for and implement integrated multi-channel, multi-disciplined navigation models that ensure the right support at the right time for every consumer across the cancer continuum.

People diagnosed with cancer often face significant anxiety and stress when navigating their treatment, care, and support needs within a complex health system. Person-centred cancer care navigation models that integrate the network of available treatment and supports offered across the health service system are crucial to enhancing the consumer experience.

Currently, care navigation is fragmented, and existing models are limited to a small number of common cancers and locations. This creates significant inequities. Nationally consistent and accessible models of cancer care navigation can guide and empower consumers to access the most appropriate care and support they require across the care continuum, based on consumer need and complexity. This would improve outcomes for all people affected by cancer, regardless of cancer type, location, or prior knowledge of the cancer care system. The navigation models would align to OCPs and provide access to various specialists and services, financial support, psychological services, and other supportive care services.

This 2-year action seeks to address barriers to the current fragmented model by:

  • co-designing a national framework to oversee development of person-centred integrated cancer care navigation models
  • implementing integrated, person-centred multi-channel and multi-disciplined cancer care navigation models that promote innovation in delivery and consider the mobility and network of different health practitioner roles to provide care
  • ongoing monitoring and evaluation of cancer care navigation models to ensure that consumers including their carers and families are receiving the right support at the right time
  • multi-channel, multi-disciplined cancer care navigation models would integrate different models of care navigation and workforce, including but not restricted to virtual care, telehealth, artificial intelligence, GPs, oncologists, and experienced nurse navigators already working within cancer care. Informal peer networks and communities could also be empowered to aid in navigation.[107]

Implementation of the programs should consider emerging technology and resources required for integrated navigation models, including workforce demand pressures for patient navigators. Close collaboration between existing services, centres, and patient navigation networks across disciplines is required for successful change and implementation of integrated navigation models.[130] Importantly, the development and piloting of any cancer care navigation model should assess the economic viability in the Australian context.

Stakeholder Quotes

[We need] solutions to assist with navigating fragmented cancer services, either through enabling GPs or more specialist cancer nurse roles to assist with system navigation
Public Consultation Submission
[We need] solutions to assist with navigating fragmented cancer services, either through enabling GPs or more specialist cancer nurse roles to assist with system navigation
Public Consultation Submission
A national governance framework for follow-up care is needed to address fragmentation of care experience, with practical guidance on the delivery of shared care follow-up that can be adapted to suit patient’s individual needs.
Public Consultation Submission
Build up the community as a navigation system and consider the role of community organisations in the co-design process.
Public Consultation Submission

Implementation Considerations

Aboriginal and Torres Strait Islander people
Adolescents and Young Adults
Children
People from Culturally and Linguistically Diverse (CALD) Backgrounds
People living with Disability
Lesbian, Gay, Bisexual, Transgender, Intersex, Queer, and Asexual (LGBTIQA+) People
People in Lower Socioeconomic Groups
People Living with a Mental Illness
Older Australians
People Living in Rural and Remote Areas
  • A national framework co-designed with Aboriginal and Torres Strait Islander people to ensure integrated navigation models are tailored to Aboriginal and Torres Strait Islander needs.
  • In collaboration with NACCHO, establishing Aboriginal and Torres Strait Islander navigators to support Aboriginal and Torres Strait Islander people across the cancer care continuum.

Aboriginal and Torres Strait Islander people

  • A national framework co-designed with Aboriginal and Torres Strait Islander people to ensure integrated navigation models are tailored to Aboriginal and Torres Strait Islander needs.
  • In collaboration with NACCHO, establishing Aboriginal and Torres Strait Islander navigators to support Aboriginal and Torres Strait Islander people across the cancer care continuum.

Adolescents and Young Adults

  • Integrated multi-channel, multi-disciplined navigation models to consider the role of families and carers in care navigation and the unique challenges associated with adolescent and young adult cancers. This could include specific adolescent and young adult cancer peer navigators or provision of support closer to home to minimise disruption to education and social activities.

Children

  • Integrated multi-channel, multi-disciplined navigation models to consider the role of families and carers in care navigation and the unique difficulties associated with childhood cancers. This could include specific childhood cancer peer navigators or provision of support closer to home to minimise disruption to schooling and social activities.

People from Culturally and Linguistically Diverse (CALD) Backgrounds

  • National navigation models to address the language barriers and varying health literacy of consumers from diverse backgrounds. This could include the use of interpreters, multilingual care coordinators, availability of resources in languages other than English, and linkages with multicultural health services.

People living with Disability

  • A national framework co-designed with people living with disability and disability support healthcare providers to ensure navigation models are tailored to the needs of people living with disability.
  • Accessibility needs addressed for those with disability who are impacted by cancer.
  • Appropriate linkages with care navigation supports through the National Disability Insurance Scheme (NDIS).

Lesbian, Gay, Bisexual, Transgender, Intersex, Queer, and Asexual (LGBTIQA+) People

  • National navigation models co-designed in partnership with LGBTIQA+ people, organisations, and advocacy groups to ensure new models reflect the specific needs of individuals within this community.

People in Lower Socioeconomic Groups

  • A national framework designed to minimise financial burden and toxicity, and ensure equitable access for all Australians, regardless of income or location.

People Living with a Mental Illness

  • National multi-disciplined navigation models that facilitate collaboration and connectivity between specialist mental health care providers and psychological assistance, alongside cancer treatment, survivorship, and end-of-life care for people living with a mental illness.

Older Australians

  • National multi-disciplined navigation models addressing the accessibility needs of older Australians, including communication and access to community-based services closer to home.
  • Appropriate linkages provided with care navigation supports through aged care programs (such as My Aged Care and the planned Support at Home program).

People Living in Rural and Remote Areas

  • National multi-disciplined navigation models addressing the needs of people living in rural and remote areas, including the role of telehealth, virtual care, and digital health to improve accessibility to navigation services and care support.
  • Health literacy, digital literacy, and accessibility improved to help consumers understand and effectively participate in all aspects of their cancer care journey, including what is meant by informed consent.

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