People Living with
a Mental Illness

People Living with a Mental Illness

In 2020–21, more than two in five (44%) Australians aged 16–85 had experienced a mental illness at some time in their life, and more than one in five (21%) Australians had experienced symptoms of that illness in the previous 12 months.[64]

Mental illness includes a range of diagnoses such as anxiety disorders, affective disorders, psychotic disorders, and substance use disorders. Mental illness affects not only the individual but also their families and carers, who play an important role in supporting people living with a mental illness including their interactions with the healthcare system.

People identifying as belonging to diverse populations may identify across multiple priority population groups. This intersectionality can result in compounding impacts of social, cultural, commercial and environmental determinants of health on cancer experiences and outcomes.

Current state

On average, people living with a mental illness die 20 years earlier than the rest of the population as a result of poorer physical health, including chronic conditions such as cancer.[65] Though linked data are not widely available, the 2017–18 Australian National Health Survey identified a higher rate of cancer in those with mental illness (2.6%) than in those without (1.6%).[66] There is also a strong association with mental illness and the use of tobacco.[66][67] For example, in 2011, lung cancer was the second leading cause of death in people who accessed mental health-related treatments.[68]

People with mental illness are more likely to experience physical comorbidity due to:

  • greater exposure to known risk factors such as smoking, poor nutrition, and higher sedentary behaviour, coupled with being less likely to have access to screening and risk modifying information and tools to reduce cancer risk[69]
  • reduced access to quality health care due to financial barriers, factors such as stigma, discrimination and diagnostic overshadowing when interacting with the healthcare system and a disconnect between health settings and health professionals caring for physical and mental health needs for people living with a mental illness.[70]

Future state

The Australian Cancer Plan aligns with the Equally Well Consensus Statement[71]and will support co-designed and tailored information to better support people living with a mental illness and cancer. Key changes seen in clinical practice will include optimal use of workforce (including practitioners working collaboratively and at the top of their scope of practice) and health professional education and training to improve their understanding of cancer risk for people living with mental illness.

The important role of family and carers will be recognised in supporting mental health consumers to engage with healthcare for better integrated cancer care, and service and delivery.

Stigma and discrimination will be reduced within the healthcare system to improve collaborative care for people living with mental illness and cancer, and their carers and family members.

Key Frameworks, Strategies, and Relevant Plans

National Mental Health and Suicide Prevention Agreement

Year: 2022
Author: Commonwealth and state and territory governments

The National Mental Health and Suicide Prevention Agreement sets out the shared intention of the Commonwealth, state and territory governments to work in partnership to improve the mental health of all Australians, reduce the rate of suicide toward zero, and ensure the sustainability and enhance the services of the Australian mental health and suicide prevention system.

https://federalfinancialrelations.gov.au/agreements/mental-health-suicide-prevention-agreement

Vision 2030

Year: 2022
Author: National Mental Health Commission, Australian Government

Vision 2030 provides a blueprint for a successful, connected mental health and suicide prevention system to meet the needs of all Australians. As part of Australia's Long Term National Health Plan, Vision 2030 takes a continuing approach to change and improvement.

https://www.mentalhealthcommission.gov.au/projects/vision-2030

National Mental Health and Wellbeing Pandemic Response Plan

Year: 2020
Author: National Mental Health Commission

The National Mental Health and Wellbeing Pandemic Response Plan was developed under the co-leadership of Victoria, New South Wales, and the Commonwealth and has been informed by all jurisdictions. It supports the mental health of Australians during and after the COVID-19 pandemic.

https://www.mentalhealthcommission.gov.au/projects/national-disaster-response/pandemic-response-plan

Implementation considerations

Maximising cancer prevention and early detection
Enhanced consumer experience
World class health systems for optimal care
Strong and dynamic foundations
Workforce to transform the delivery of cancer care
Achieving equity in cancer outcomes for Aboriginal and Torres Strait Islander people

Stakeholder input

Stakeholders noted that people with a mental illness may receive a delayed cancer diagnosis due to challenges in accessing screening and prevention programs.

2 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Overcoming barriers for individuals with mental illness to coordinate regular ongoing primary care and preventive care.
  • Frequent and proactive offers for screening or other cancer care.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Further research on the impact of stigma, discrimination, and comorbid conditions on cancer outcomes for people living with a mental illness.
-

2 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Overcoming barriers for individuals with mental illness to coordinate regular ongoing primary care and preventive care.
  • Frequent and proactive offers for screening or other cancer care.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Further research on the impact of stigma, discrimination, and comorbid conditions on cancer outcomes for people living with a mental illness.
-

Maximising cancer prevention and early detection

Stakeholder input

Stakeholders noted that people with a mental illness may receive a delayed cancer diagnosis due to challenges in accessing screening and prevention programs.

2 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Overcoming barriers for individuals with mental illness to coordinate regular ongoing primary care and preventive care.
  • Frequent and proactive offers for screening or other cancer care.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Further research on the impact of stigma, discrimination, and comorbid conditions on cancer outcomes for people living with a mental illness.
-

2 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Overcoming barriers for individuals with mental illness to coordinate regular ongoing primary care and preventive care.
  • Frequent and proactive offers for screening or other cancer care.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Further research on the impact of stigma, discrimination, and comorbid conditions on cancer outcomes for people living with a mental illness.
-

Enhanced consumer experience

Stakeholder input

Stakeholders raised the important role of family carers in supporting mental health consumers to engage with healthcare service providers. This should be acknowledged and better integrated into cancer care.

2 Years

Actions

2.2.1
Develop a national framework for and implement integrated multi-channel, multi-disciplined navigation models that ensure the right support at the right time for every consumer across the cancer continuum.
  • National multi-disciplined navigation models that facilitate collaboration and connectivity between specialist mental health care providers and psychological assistance, alongside cancer treatment, survivorship, and end-of-life care for people living with a mental illness.
-
2.2.2
Improve availability of co-designed, tailored information and care for consumers to improve health literacy and reduce cancer-related stigma.
  • Build awareness of cancer care and services for people living with a mental illness, such as psychosocial care, allied health care and financial planning advice support services.
  • Disseminate tailored resources for people living with a mental illness available on reputable cancer websites for greater access to information and care.
-

2 Years

Actions

2.2.1
Develop a national framework for and implement integrated multi-channel, multi-disciplined navigation models that ensure the right support at the right time for every consumer across the cancer continuum.
  • National multi-disciplined navigation models that facilitate collaboration and connectivity between specialist mental health care providers and psychological assistance, alongside cancer treatment, survivorship, and end-of-life care for people living with a mental illness.
-
2.2.2
Improve availability of co-designed, tailored information and care for consumers to improve health literacy and reduce cancer-related stigma.
  • Build awareness of cancer care and services for people living with a mental illness, such as psychosocial care, allied health care and financial planning advice support services.
  • Disseminate tailored resources for people living with a mental illness available on reputable cancer websites for greater access to information and care.
-

World class health systems for optimal care

Stakeholder input

People living with a mental illness may have difficulties in accessing primary care services including Aboriginal Community Controlled Health Services, and in coordinating their cancer care.

2 Years

Actions

3.2.1
Develop and implement a national framework that standardises the development, update, evaluation and uptake of Optimal Care Pathways (OCPs), including for priority population groups.
  • National framework that addresses comorbidity, chronic illness, accessibility, collaboration with non-cancer care health professionals, potential medication/treatment interactions and the impact of guidelines.
-
3.2.2
Develop a national framework for networked, distributed comprehensive cancer care, to facilitate provision of services as close as safely possible to where patients live. This will include the role of Comprehensive Cancer Centres to enhance patient outcomes, strengthen transparency and accountability, and drive continuous improvements for all patients across the network regardless of where the care is provided.
  • National framework for networked comprehensive cancer care designed for people living with a mental illness, such as the inclusion of psychological support systems and mental health specialists within the networked comprehensive cancer care.
-
3.2.3
Implement innovative, evidence-based and cost-effective models of care for people living with and beyond cancer.
  • Innovative, evidence-based models of care for people living with a mental illness that include psychological and social support services, and the treatment interactions for the mental illness.
-
3.2.4
Develop and refine integrated care models to maximise access to high-quality, timely and evidence-based palliative and end-of-life care, including voluntary assisted dying.
  • Integrated care models that provide psychological services for people living with a mental illness and engaging with palliative care, advance care planning, end-of-life care and VAD.
  • Integrated care models that extend palliative care, advance care planning, and end-of-life care training to psychological care providers.
-

2 Years

Actions

3.2.1
Develop and implement a national framework that standardises the development, update, evaluation and uptake of Optimal Care Pathways (OCPs), including for priority population groups.
  • National framework that addresses comorbidity, chronic illness, accessibility, collaboration with non-cancer care health professionals, potential medication/treatment interactions and the impact of guidelines.
-
3.2.2
Develop a national framework for networked, distributed comprehensive cancer care, to facilitate provision of services as close as safely possible to where patients live. This will include the role of Comprehensive Cancer Centres to enhance patient outcomes, strengthen transparency and accountability, and drive continuous improvements for all patients across the network regardless of where the care is provided.
  • National framework for networked comprehensive cancer care designed for people living with a mental illness, such as the inclusion of psychological support systems and mental health specialists within the networked comprehensive cancer care.
-
3.2.3
Implement innovative, evidence-based and cost-effective models of care for people living with and beyond cancer.
  • Innovative, evidence-based models of care for people living with a mental illness that include psychological and social support services, and the treatment interactions for the mental illness.
-
3.2.4
Develop and refine integrated care models to maximise access to high-quality, timely and evidence-based palliative and end-of-life care, including voluntary assisted dying.
  • Integrated care models that provide psychological services for people living with a mental illness and engaging with palliative care, advance care planning, end-of-life care and VAD.
  • Integrated care models that extend palliative care, advance care planning, and end-of-life care training to psychological care providers.
-

Strong and dynamic foundations

Stakeholder input

The lack of consumer voices both in research findings and research production was raised. Also highlighted was the rarity of cancer and diagnosed mental illness being reported in the same dataset e.g., cancer registries. In addition, when co-reported data are available, it can be hard to identify which diagnosis came first.

2 Years

Actions

4.2.1
Develop an agreed national cancer data framework to improve accessibility, consistency and comprehensiveness of integrated data assets.
  • Improved demographic data collection to understand cancer risks and experiences of people living with a mental illness.
-
4.2.2
Ensure targeted and innovative research investment into areas of unmet and emerging need; and improve clinical trial design and equitable access.
  • Prioritise targeted research to better understand cancer risks and experiences of people living with a mental illness.
-
4.2.3
Identify opportunities to improve equitable cancer care through the digital health ecosystem.
  • Digital health ecosystem that ensures that people living with a mental illness feel included in virtual consultations, have equitable access to emerging digital technologies and continue to experience the same level of person-centred care as they do with in-person appointments.
-

2 Years

Actions

4.2.1
Develop an agreed national cancer data framework to improve accessibility, consistency and comprehensiveness of integrated data assets.
  • Improved demographic data collection to understand cancer risks and experiences of people living with a mental illness.
-
4.2.2
Ensure targeted and innovative research investment into areas of unmet and emerging need; and improve clinical trial design and equitable access.
  • Prioritise targeted research to better understand cancer risks and experiences of people living with a mental illness.
-
4.2.3
Identify opportunities to improve equitable cancer care through the digital health ecosystem.
  • Digital health ecosystem that ensures that people living with a mental illness feel included in virtual consultations, have equitable access to emerging digital technologies and continue to experience the same level of person-centred care as they do with in-person appointments.
-

Workforce to transform the delivery of cancer care

Stakeholder input

Stakeholders raised that having a cancer diagnosis while living with a mental illness can create added complexity that needs to be addressed within the health system. Significant challenges occur when the behaviours, thoughts, or feelings of a person with a mental illness overshadow the care being provided by healthcare providers.

Education and training for the cancer care workforce should include improved understanding of the additional cancer risk for, and challenges faced by, people living with a mental illness.

2 Years
5 Years

Actions

5.2.1
Identify current and emerging workforce undersupply in line with cancer workforce modelling and other national health workforce strategies, and initiate planning with the sector towards building future workforce capacity and capability.
  • Model the distribution of cancer care practitioners trained in treating people living with a mental illness, given potential medication and/or treatment interactions and specific communication and support needs.
-
5.2.2
Build on existing capability of the primary care workforce to collaboratively and sustainably support the needs of consumers.
  • Extend the scope of practice for primary care workers within the mental health space to provide supportive care for people living with a mental illness who have cancer.
-

2 Years

Actions

5.2.1
Identify current and emerging workforce undersupply in line with cancer workforce modelling and other national health workforce strategies, and initiate planning with the sector towards building future workforce capacity and capability.
  • Model the distribution of cancer care practitioners trained in treating people living with a mental illness, given potential medication and/or treatment interactions and specific communication and support needs.
-
5.2.2
Build on existing capability of the primary care workforce to collaboratively and sustainably support the needs of consumers.
  • Extend the scope of practice for primary care workers within the mental health space to provide supportive care for people living with a mental illness who have cancer.
-

5 Years

Actions

5.5.2
Assist the sector to support all cancer care practitioners to work at the top of their scope of practice, increase retention and ensure ongoing access to continuing professional development.
  • Increase investment in professional development to ensure health professionals are knowledgeable of the unique considerations required when treating people affected by cancer and living with a mental illness.
-

Achieving equity in cancer outcomes for Aboriginal and Torres Strait Islander people

The Australian Cancer Plan considers an intersectional and health equity approach for Aboriginal and Torres Strait Islander people. This is more than recognising the multiple backgrounds, experiences, and ways Aboriginal and Torres Strait Islander people identify. This approach addresses the way membership of multiple groups may impact people's health and wellbeing needs and ability to access care.

Implementation of each action should consider the compounding impacts of intersectionality across other priority population groups.

2 Years
5 Years

Actions

6.2.1
Embed Aboriginal and Torres Strait Islander voices in policymaking on cancer prevention, care delivery and standards through leadership, collaboration and co-design processes.
6.2.2
Strengthen collaboration with service providers, regulatory authorities and the Aboriginal and Torres Strait Islander cancer workforce to establish clear accountability for culturally safe care and compliance with national standards.
6.2.3
Establish and enhance collaborative partnerships with communities and Aboriginal and Torres Strait Islander-led organisations.

2 Years

Actions

6.2.1
Embed Aboriginal and Torres Strait Islander voices in policymaking on cancer prevention, care delivery and standards through leadership, collaboration and co-design processes.
6.2.2
Strengthen collaboration with service providers, regulatory authorities and the Aboriginal and Torres Strait Islander cancer workforce to establish clear accountability for culturally safe care and compliance with national standards.
6.2.3
Establish and enhance collaborative partnerships with communities and Aboriginal and Torres Strait Islander-led organisations.

5 Years

Actions

6.5.1
Establish ongoing place-based engagement with Aboriginal and Torres Strait Islander people to understand emerging needs across the cancer care continuum.
6.5.2
Implement strategies to embed culturally safe care within cancer-related services for Aboriginal and Torres Strait Islander people.

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