People Living
in Rural &
Remote Areas
People Living
In Rural
& Remote Areas

People Living in Rural and Remote Areas

Remoteness areas are defined into five classes of relative remoteness (major cities, inner regional, outer regional, remote, and very remote) and are based on road distance people must travel for services.[77] In Australia, around 28% of the Australian population (about 7 million people) live in rural or remote areas.[77]

Aboriginal and Torres Strait Islander people are more likely to live in urban and regional areas compared with more remote areas. However, the proportion of the total population who are Indigenous increases with remoteness from 1.1% in major cities, to 32% in remote and very remote areas.[19]

People identifying as belonging to diverse populations may identify across multiple priority population groups. This intersectionality can result in compounding impacts of social, cultural, commercial and environmental determinants of health on cancer experiences and outcomes.

Current state

People living in remote areas of Australia are 1.3 times more likely to die from cancer and have a lower 5-year relative survival rate compared to those living in major cities.[1] Additionally, people living in rural and remote areas have higher rates of hospitalisation, death, and injury, and have poorer access to and use of primary health care services than people living in major cities.[77]

Poorer cancer outcomes may be related to health workforce shortages in remote and very remote areas, despite having a greater need for medical services and practitioners with a broader scope of practice.[77][78]

People living in remote areas are also more likely to engage in risky behaviours, such as smoking and consuming alcohol at excessive levels, and are less likely to participate in cancer screening services compared to those living in major cities.[21][22][23][77]

People living in rural and remote areas face barriers to accessing health care due to challenges of geographic spread, low population density, limited infrastructure, and the higher costs of delivering rural and remote health care. Travel is a significant barrier to accessing health services and can lead to reduced access to cancer care across the care pathway. Additional costs associated with travel to metropolitan centres increases the impact of a cancer diagnosis on a person and their families.[77]

Future state

The Australian Cancer Plan aims to improve health equity for people living in rural and remote areas of Australia. This includes developing innovative models of care including digital health and navigation, improving access to optimal cancer care, and building the capability of the primary care workforce.

Key Frameworks, Strategies, and Relevant Plans

Stronger Rural Health Strategy

Year: 2018
Author: Department of Health and Aged Care, Australian Government

The Stronger Rural Health Strategy aims to improve the health of people in Australia through the supply of a quality health workforce that is distributed across the country according to community need.

https://www.health.gov.au/health-topics/rural-health-workforce/stronger-rural-health-strategy

National Strategy for the Elimination of Cervical Cancer

Year: In development
Author: Australian Centre for the Prevention of Cervical Cancer

The National Strategy for the Elimination of Cervical Cancer will aim to eliminate cervical cancer for all people with a cervix across the diverse communities in Australia.

https://acpcc.org.au/elimination/

National Strategic Framework for Rural and Remote Health

Year: 2016
Author: Department of Health and Aged Care, Australian Government

The National Strategic Framework for Rural and Remote Health promotes a national approach to policy, planning, design, and delivery of health services to improve health outcomes for rural and remote Australians. While primarily directed at policy makers at the national, state and territory levels, the strategy is also a tool for communities and local health service providers to plan services and programs according to local needs.

https://www1.health.gov.au/internet/main/publishing.nsf/Content/national-strategic-framework-rural-remote-health

Rural and Remote Health and Wellbeing Strategy 2022–2027

Year: 2022
Author: Queensland Health

Queensland’s Rural and Remote Health and Wellbeing Strategy 2022–2027 aims to create a system that is more connected and easier to navigate, empowers consumers and clinicians, increases participation in preventative programs, and creates sustainable healthcare models.

https://www.health.qld.gov.au/system-governance/strategic-direction/plans/rural-and-remote-health-and-wellbeing-strategy

Digital Strategy for Rural and Remote Healthcare

Year: 2021
Author: Queensland Health

Queensland’s Digital Strategy for Rural and Remote Healthcare aims to improve access to care and support better health outcomes for rural and remote Queenslanders through digital infrastructure, systems, and solutions.

https://www.publications.qld.gov.au/dataset/digital-strategy-for-rural-and-remote-healthcare/resource/d9e7faeb-aa04-4faa-a9c1-43d6ce89c455

Strategic Plan 2019–24: WA Country Health Service

Year: 2019
Author: WA Country Health Service

Western Australia’s Strategic Plan 2019–24: WA Country Health Service provides a roadmap for achieving a sustainable future, including greater equity for country communities through enhanced access to healthcare.

https://www.wacountry.health.wa.gov.au/About-us/Publications/Strategic-plans/WACHS-Strategic-Plan-2019-24---Online-version

Rural and Remote Health Workforce Strategy for Queensland

Year: 2017
Author: Queensland Health

Queensland’s Rural and Remote Health Workforce Strategy for Queensland outlines the overarching priorities and strategies for building the future rural and remote health workforce for Queensland.

https://www.health.qld.gov.au/system-governance/strategic-direction/plans/rural-remote-workforce-strategy

Implementation considerations

Maximising cancer prevention and early detection
Enhanced consumer experience
World class health systems for optimal care
Strong and dynamic foundations
Workforce to transform the delivery of cancer care
Achieving equity in cancer outcomes for Aboriginal and Torres Strait Islander people

Stakeholder input

Comparatively fewer cancer services leads to limited access to cancer screening and prevention programs for people living in rural and remote areas. Stakeholders identified that greater accessibility of cancer screening and prevention services is needed to increase engagement in these services for people living in rural and remote areas.

2 Years
5 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Improved access to preventive care in rural and remote areas, including more accessible and affordable options through pop-up services and virtual care.
  • Additional support through increased access to healthy eating choices that address issues of food security, and funded programs to support education and lifestyle behaviour change.
  • Tailored education and awareness campaigns to increase health literacy.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Assess and address the impact of accessibility to healthcare, income, housing, and food security on cancer outcomes for individuals living in rural and remote areas.
-
1.2.4
Undertake ongoing assessment of the evidence for risk-based, cost-effective population cancer screening.
  • Risk-based population cancer screening to include the social and geographical risks that increase the likelihood of developing cancer for people living in rural and remote locations, including reduced access to regular health check-ups and screening, sun exposure, food insecurity, and higher rates of smoking.
  • Assessment of risk-based population screening initiatives to consider scalability into rural and remote areas to ensure equitable access.
-

2 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Improved access to preventive care in rural and remote areas, including more accessible and affordable options through pop-up services and virtual care.
  • Additional support through increased access to healthy eating choices that address issues of food security, and funded programs to support education and lifestyle behaviour change.
  • Tailored education and awareness campaigns to increase health literacy.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Assess and address the impact of accessibility to healthcare, income, housing, and food security on cancer outcomes for individuals living in rural and remote areas.
-
1.2.4
Undertake ongoing assessment of the evidence for risk-based, cost-effective population cancer screening.
  • Risk-based population cancer screening to include the social and geographical risks that increase the likelihood of developing cancer for people living in rural and remote locations, including reduced access to regular health check-ups and screening, sun exposure, food insecurity, and higher rates of smoking.
  • Assessment of risk-based population screening initiatives to consider scalability into rural and remote areas to ensure equitable access.
-

5 Years

Actions

1.5.3
Implement new, and improve existing, evidenced-based, risk-stratified cancer screening programs.
  • Risk-stratified cancer screening programs designed for rural and remote areas.
-
1.5.4
Develop a policy framework for genomics in cancer control across the cancer care continuum.
  • Policy framework to include accessibility and how this technology will be made available beyond metropolitan areas.
  • Policy framework to include scalability and equity in access for all Australians, regardless of location.
-

Maximising cancer prevention and early detection

Stakeholder input

Comparatively fewer cancer services leads to limited access to cancer screening and prevention programs for people living in rural and remote areas. Stakeholders identified that greater accessibility of cancer screening and prevention services is needed to increase engagement in these services for people living in rural and remote areas.

2 Years
5 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Improved access to preventive care in rural and remote areas, including more accessible and affordable options through pop-up services and virtual care.
  • Additional support through increased access to healthy eating choices that address issues of food security, and funded programs to support education and lifestyle behaviour change.
  • Tailored education and awareness campaigns to increase health literacy.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Assess and address the impact of accessibility to healthcare, income, housing, and food security on cancer outcomes for individuals living in rural and remote areas.
-
1.2.4
Undertake ongoing assessment of the evidence for risk-based, cost-effective population cancer screening.
  • Risk-based population cancer screening to include the social and geographical risks that increase the likelihood of developing cancer for people living in rural and remote locations, including reduced access to regular health check-ups and screening, sun exposure, food insecurity, and higher rates of smoking.
  • Assessment of risk-based population screening initiatives to consider scalability into rural and remote areas to ensure equitable access.
-

2 Years

Actions

1.2.1
Deliver cancer prevention and health promotion activities, including healthy lifestyles, immunisation, and population screening participation, co-designed and tailored to a range of settings.
  • Improved access to preventive care in rural and remote areas, including more accessible and affordable options through pop-up services and virtual care.
  • Additional support through increased access to healthy eating choices that address issues of food security, and funded programs to support education and lifestyle behaviour change.
  • Tailored education and awareness campaigns to increase health literacy.
-
1.2.3
Promote translational research on the impact of social, cultural, commercial and environmental determinants of health on cancer outcomes for priority populations to inform policy and practice.
  • Assess and address the impact of accessibility to healthcare, income, housing, and food security on cancer outcomes for individuals living in rural and remote areas.
-
1.2.4
Undertake ongoing assessment of the evidence for risk-based, cost-effective population cancer screening.
  • Risk-based population cancer screening to include the social and geographical risks that increase the likelihood of developing cancer for people living in rural and remote locations, including reduced access to regular health check-ups and screening, sun exposure, food insecurity, and higher rates of smoking.
  • Assessment of risk-based population screening initiatives to consider scalability into rural and remote areas to ensure equitable access.
-

5 Years

Actions

1.5.3
Implement new, and improve existing, evidenced-based, risk-stratified cancer screening programs.
  • Risk-stratified cancer screening programs designed for rural and remote areas.
-
1.5.4
Develop a policy framework for genomics in cancer control across the cancer care continuum.
  • Policy framework to include accessibility and how this technology will be made available beyond metropolitan areas.
  • Policy framework to include scalability and equity in access for all Australians, regardless of location.
-

Enhanced consumer experience

Stakeholder input

Stakeholders indicated that people living in rural and remote areas have less choice and access to healthcare, including supportive care. Most services are concentrated in metropolitan areas that require extensive travel and dislocation from family, and there is limited access to multidisciplinary health professionals.

Limited access to clinical trials and comprehensive health care impact opportunities for optimal experiences and outcomes for people living in rural and remote areas. Relatively scarce resources in rural and remote areas limit access to specialist expertise for complex cancer care and reduce opportunities for equitable cancer outcomes.

2 Years

Actions

2.2.1
Develop a national framework for and implement integrated multi-channel, multi-disciplined navigation models that ensure the right support at the right time for every consumer across the cancer continuum.
  • National multi-disciplined navigation models addressing the needs of people living in rural and remote areas, including the role of telehealth, virtual care, and digital health to improve accessibility to navigation services and care support.
  • Health literacy, digital literacy, and accessibility improved to help consumers understand and effectively participate in all aspects of their cancer care journey, including what is meant by informed consent.
-
2.2.2
Improve availability of co-designed, tailored information and care for consumers to improve health literacy and reduce cancer-related stigma.
  • Expand virtual care, telehealth services and online resources to give people living in rural and remote areas better access to information on cancer to help them navigate the cancer care system and enable better access to supportive care.
-

2 Years

Actions

2.2.1
Develop a national framework for and implement integrated multi-channel, multi-disciplined navigation models that ensure the right support at the right time for every consumer across the cancer continuum.
  • National multi-disciplined navigation models addressing the needs of people living in rural and remote areas, including the role of telehealth, virtual care, and digital health to improve accessibility to navigation services and care support.
  • Health literacy, digital literacy, and accessibility improved to help consumers understand and effectively participate in all aspects of their cancer care journey, including what is meant by informed consent.
-
2.2.2
Improve availability of co-designed, tailored information and care for consumers to improve health literacy and reduce cancer-related stigma.
  • Expand virtual care, telehealth services and online resources to give people living in rural and remote areas better access to information on cancer to help them navigate the cancer care system and enable better access to supportive care.
-

World class health systems for optimal care

Stakeholder input

People living in rural and remote areas have more limited access to care across the cancer care pathway for reasons including availability of services and infrastructure close to home, and workforce shortages. People living in remote and rural areas also incur additional costs associated with travel because cancer services are more concentrated in metropolitan areas. Stakeholders noted that the ability to receive care from known, trusted health professionals (including via telehealth) can support delivery of optimal, person-centred cancer care for people living in rural and remote areas.

2 Years

Actions

3.2.1
Develop and implement a national framework that standardises the development, update, evaluation and uptake of Optimal Care Pathways (OCPs), including for priority population groups.
  • National framework that provides for virtual care and telehealth pathways to improve accessibility, navigation and reduce travel costs due to distance and longer waitlists for cancer care services outside large metropolitan areas.
-
3.2.2
Develop a national framework for networked, distributed comprehensive cancer care, to facilitate provision of services as close as safely possible to where patients live. This will include the role of Comprehensive Cancer Centres to enhance patient outcomes, strengthen transparency and accountability, and drive continuous improvements for all patients across the network regardless of where the care is provided.
  • National framework for networked comprehensive cancer care designed to extend access to the expertise and capabilities of comprehensive cancer centres to health service providers and consumers including their carers and families in regional, rural, and remote areas, expanding access to comprehensive cancer care for all Australians, regardless of location.
  • Provide preventive, diagnostic, chronic, palliative, and end-of-life cancer care as close to home as possible. Extend patient travel assistance schemes, when local care cannot be provided (e.g. acute specialist care), to promote access to comprehensive cancer care and comprehensive cancer centres for those in rural, regional, and remote areas.
-
3.2.3
Implement innovative, evidence-based and cost-effective models of care for people living with and beyond cancer.
  • Innovative, evidence-based models of care that extend telehealth and digital health to all types of care and services, such as allied health and supportive care. Prioritise types of care that are commonly hard to access in rural and remote communities, such as dietitians, genetic counsellors, and gynaecologic oncologists.
  • Support the role of rural general practitioners in multidisciplinary teams to address inequities in rural health as these areas have less access and referral services to treatment, survivorship care and nurse-led models.
  • Extend the scope of practice for rural GPs to include survivorship care.
-
3.2.4
Develop and refine integrated care models to maximise access to high-quality, timely and evidence-based palliative and end-of-life care, including voluntary assisted dying.
  • Integrated care models that expand access to at-home palliative care, advance care planning, end-of-life care and VAD options and ensure consumers, carers and family members are made aware of these options.
  • Integrated care models that provide palliative care, advance care planning, end-of-life care and VAD training for rural and remote healthcare practitioners.
  • Integrated care models that leverage digital health for palliative care, advance care planning, end-of-life care and VAD to reduce the requirements for travel.
-

2 Years

Actions

3.2.1
Develop and implement a national framework that standardises the development, update, evaluation and uptake of Optimal Care Pathways (OCPs), including for priority population groups.
  • National framework that provides for virtual care and telehealth pathways to improve accessibility, navigation and reduce travel costs due to distance and longer waitlists for cancer care services outside large metropolitan areas.
-
3.2.2
Develop a national framework for networked, distributed comprehensive cancer care, to facilitate provision of services as close as safely possible to where patients live. This will include the role of Comprehensive Cancer Centres to enhance patient outcomes, strengthen transparency and accountability, and drive continuous improvements for all patients across the network regardless of where the care is provided.
  • National framework for networked comprehensive cancer care designed to extend access to the expertise and capabilities of comprehensive cancer centres to health service providers and consumers including their carers and families in regional, rural, and remote areas, expanding access to comprehensive cancer care for all Australians, regardless of location.
  • Provide preventive, diagnostic, chronic, palliative, and end-of-life cancer care as close to home as possible. Extend patient travel assistance schemes, when local care cannot be provided (e.g. acute specialist care), to promote access to comprehensive cancer care and comprehensive cancer centres for those in rural, regional, and remote areas.
-
3.2.3
Implement innovative, evidence-based and cost-effective models of care for people living with and beyond cancer.
  • Innovative, evidence-based models of care that extend telehealth and digital health to all types of care and services, such as allied health and supportive care. Prioritise types of care that are commonly hard to access in rural and remote communities, such as dietitians, genetic counsellors, and gynaecologic oncologists.
  • Support the role of rural general practitioners in multidisciplinary teams to address inequities in rural health as these areas have less access and referral services to treatment, survivorship care and nurse-led models.
  • Extend the scope of practice for rural GPs to include survivorship care.
-
3.2.4
Develop and refine integrated care models to maximise access to high-quality, timely and evidence-based palliative and end-of-life care, including voluntary assisted dying.
  • Integrated care models that expand access to at-home palliative care, advance care planning, end-of-life care and VAD options and ensure consumers, carers and family members are made aware of these options.
  • Integrated care models that provide palliative care, advance care planning, end-of-life care and VAD training for rural and remote healthcare practitioners.
  • Integrated care models that leverage digital health for palliative care, advance care planning, end-of-life care and VAD to reduce the requirements for travel.
-

Strong and dynamic foundations

Stakeholder input

The limited availability of clinical trials in rural and remote areas was raised. New approaches to expand access to services and clinical trials for people living in rural and remote areas should be considered to increase cancer treatment and care opportunities for this population group.

2 Years

Actions

4.2.1
Develop an agreed national cancer data framework to improve accessibility, consistency and comprehensiveness of integrated data assets.
  • Improved data collection and analysis on the impact of remoteness on cancer care outcomes.
-
4.2.2
Ensure targeted and innovative research investment into areas of unmet and emerging need; and improve clinical trial design and equitable access.
  • Prioritise targeted funding to expand services and research into rural and remote populations.
  • Extend patient travel assistance schemes to include clinical trial participation.
-
4.2.3
Identify opportunities to improve equitable cancer care through the digital health ecosystem.
  • Digital health ecosystem that addresses the role of internet access, connectivity issues and digital infrastructure when implementing virtual models of care in rural and remote areas.
  • Digital health ecosystem that ensures the healthcare workforce in rural and remote areas are prioritised for training in the delivery of digitally enabled cancer care.
  • Digital health ecosystem that ensures that people living in rural and remote areas continue to have access to in-person cancer care.
-

2 Years

Actions

4.2.1
Develop an agreed national cancer data framework to improve accessibility, consistency and comprehensiveness of integrated data assets.
  • Improved data collection and analysis on the impact of remoteness on cancer care outcomes.
-
4.2.2
Ensure targeted and innovative research investment into areas of unmet and emerging need; and improve clinical trial design and equitable access.
  • Prioritise targeted funding to expand services and research into rural and remote populations.
  • Extend patient travel assistance schemes to include clinical trial participation.
-
4.2.3
Identify opportunities to improve equitable cancer care through the digital health ecosystem.
  • Digital health ecosystem that addresses the role of internet access, connectivity issues and digital infrastructure when implementing virtual models of care in rural and remote areas.
  • Digital health ecosystem that ensures the healthcare workforce in rural and remote areas are prioritised for training in the delivery of digitally enabled cancer care.
  • Digital health ecosystem that ensures that people living in rural and remote areas continue to have access to in-person cancer care.
-

Workforce to transform the delivery of cancer care

Stakeholder input

Stakeholders emphasised that, compared to metropolitan locations, there are limited health professionals in rural and remote Australia, including specialists, primary care providers and nurses. The limited access to health services in rural and remote areas can act as a barrier to rural and remote Australians accessing timely and appropriate cancer care.

Investment in training, recruitment, and retention of the rural and remote workforce would increase the number of accessible cancer care services delivered in these areas.

In addition, increasing telehealth services was seen as an opportunity to increase accessible cancer care to this priority population group.

Cancer survivors in rural and remote areas can feel isolated, fearful, and disconnected from services when they return home from having treatment in urban centres.

2 Years
5 Years

Actions

5.2.1
Identify current and emerging workforce undersupply in line with cancer workforce modelling and other national health workforce strategies, and initiate planning with the sector towards building future workforce capacity and capability.
  • Collect and analyse data on the availability of primary care workers upskilled in aspects of cancer care and the use of digital technologies to enable greater cancer care service reach.
-
5.2.2
Build on existing capability of the primary care workforce to collaboratively and sustainably support the needs of consumers.
  • Address primary care workforce shortages in rural and remote areas to ensure consumers located outside metropolitan areas have access to cancer care, as close to home as is safe and feasible.
  • Upskill rural and remote primary care workforce in cancer screening and early detection approaches.
-

2 Years

Actions

5.2.1
Identify current and emerging workforce undersupply in line with cancer workforce modelling and other national health workforce strategies, and initiate planning with the sector towards building future workforce capacity and capability.
  • Collect and analyse data on the availability of primary care workers upskilled in aspects of cancer care and the use of digital technologies to enable greater cancer care service reach.
-
5.2.2
Build on existing capability of the primary care workforce to collaboratively and sustainably support the needs of consumers.
  • Address primary care workforce shortages in rural and remote areas to ensure consumers located outside metropolitan areas have access to cancer care, as close to home as is safe and feasible.
  • Upskill rural and remote primary care workforce in cancer screening and early detection approaches.
-

5 Years

Actions

5.5.2
Assist the sector to support all cancer care practitioners to work at the top of their scope of practice, increase retention and ensure ongoing access to continuing professional development.
  • Increase professional development opportunities for rural and remote health workforces to work at the top of their scope of practice and ability to improve access to cancer care.
  • Australia’s National Digital Health Strategy[148] outlines a need to increase workforce capability in using new digital tools for consumer care, creating more accessible care options for people living in rural and remote areas.
-

Achieving equity in cancer outcomes for Aboriginal and Torres Strait Islander people

The Australian Cancer Plan considers an intersectional and health equity approach for Aboriginal and Torres Strait Islander people. This is more than recognising the multiple backgrounds, experiences, and ways Aboriginal and Torres Strait Islander people identify. This approach addresses the way membership of multiple groups may impact people's health and wellbeing needs and ability to access care.

Implementation of each action should consider the compounding impacts of intersectionality across other priority population groups.

2 Years
5 Years

Actions

6.2.1
Embed Aboriginal and Torres Strait Islander voices in policymaking on cancer prevention, care delivery and standards through leadership, collaboration and co-design processes.
6.2.2
Strengthen collaboration with service providers, regulatory authorities and the Aboriginal and Torres Strait Islander cancer workforce to establish clear accountability for culturally safe care and compliance with national standards.
6.2.3
Establish and enhance collaborative partnerships with communities and Aboriginal and Torres Strait Islander-led organisations.

2 Years

Actions

6.2.1
Embed Aboriginal and Torres Strait Islander voices in policymaking on cancer prevention, care delivery and standards through leadership, collaboration and co-design processes.
6.2.2
Strengthen collaboration with service providers, regulatory authorities and the Aboriginal and Torres Strait Islander cancer workforce to establish clear accountability for culturally safe care and compliance with national standards.
6.2.3
Establish and enhance collaborative partnerships with communities and Aboriginal and Torres Strait Islander-led organisations.

5 Years

Actions

6.5.1
Establish ongoing place-based engagement with Aboriginal and Torres Strait Islander people to understand emerging needs across the cancer care continuum.
6.5.2
Implement strategies to embed culturally safe care within cancer-related services for Aboriginal and Torres Strait Islander people.

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